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A journey with Parkinson’s

12/2/2018

8 Comments

 
Picture
David Kemp has been ticking off milestones on a path that few others will travel. Next is brain surgery under a local anaesthetic.

By Geoff Ellis

DAVID Kemp likes to share a journey. Last December he gave Santa a lift into Corinella in his big red truck, a 70-year-old Bedford. Since then David has been ticking off milestones on a path few others will travel.
 
Six years ago David visited his doctor after a fall. There was also an occasional hand tremor. Referred to a neurologist, his symptoms informed a diagnosis of Parkinson’s disease. An MRI scan proved that no other neurological conditions existed. He was then prescribed medication to reduce the symptoms.
 
“It was good to have a label,” recalls David, “though the medication could not provide a cure. At least the symptoms could be managed.” David rejected a “poor me” attitude and chose not to let Parkinson’s force him to withdraw from life. With near missionary zeal he undertook to increase understanding of the disease and encourage others with the same condition.
 
No one yet can tell how people acquire Parkinson’s disease. It isn’t hereditary, it isn’t contagious and isn’t caused by the environment. The symptoms result from reduced production of dopamine which is used within the brain to send signals that cause muscles to move.
 
Dopamine is produced by nerve cells called neurons, in the basal ganglia, the middle of the brain. With Parkinson’s, the neurons gradually break down, reducing the level of dopamine, resulting in abnormal brain activity. This means that people have difficulty controlling their movements or moving freely.
 
“It has no real impact on life expectancy. One dies with it, not from it,” says David, “This is my journey with Parkinson’s.” There are review consultations every three months. It is a somewhat trial and error process to get the medications and the dosages right. Though the levels have been progressively increased, by mid-2017 the fatigue, lack of sleep, leg cramps, right side tremors, reduced fine motor control and reduced walking control meant David was struggling to maintain a healthy lifestyle.
 
He says his wife, Ruth, and the family have been tremendously supportive. He is thankful to God for boundless blessings as he remains an active member of the community. He is driven by his Christian faith, his personal mission and the satisfaction he gets when folk share their journeys with him. Christmas was a good time to reflect on such things and prepare for the year ahead.
 
Three weeks after giving Santa that lift, David visited the team at Malvern Neurology at Cabrini Hospital Medical Centre to test his suitability for a procedure that will change his life. The assessment included consideration of David’s physical condition and his psychological resilience.
 
Not everyone could gleefully consider having brain surgery under local anaesthetic, let alone advise the neurosurgeon as he guides electrodes deep into the middle of their brain but David’s enthusiasm was overwhelming.
 
He talks about deep brain stimulation (DBS) the way most people talk about an overseas holiday. DBS tricks the brain into thinking that dopamine is being released. Once the electrodes are in place, the operation includes implanting a pacemaker into David’s chest under a general anaesthetic. This is linked to the electrodes through fine wires under the skin. The entire process takes three to four hours. Once in place the pacemaker will send electrical current to specific regions of David’s brain.
 
The hospital stay is around seven days though the recovery period will be about six weeks. Frequent visits are made during this period to adjust the electric stimulation and adapt medication to the changes in symptoms.
 
Although not common, DBS is far from experimental, having first been trialled nearly two decades ago. One of David’s friends, Peter Raymond, underwent the same procedure in 2014, resulting in a very successful outcome. His operation was televised by the ABC’s 7.30 Report. He still has PD and leads a normal life.
 
Crunch time for David came when he received the news that he was suitable for BDS. On January 9, he sat with Ruth and they made the decision to go ahead. It’s her journey too, after all.
 
There are some serious risks to consider, including brain damage. Mood or behaviour might be affected and there are other potential side effects.  “The risks are significant but it’s reassuring to be in top surgical hands,” David says. He is using the same team as Peter Raymond and is confidently looking forward to the benefits of DBS.
 
During the recovery phase he won’t be permitted to drive. He won’t be capable of making major decisions until the stimulation and medication adjustments restore order. “I told the family that I may be grumpy when I’m not allowed to drive the red truck.”
 
“We won’t notice any difference, Dad!” one of his children  replied.
 
Surgery is scheduled for March 21 at Cabrini.
 
Is he hesitant? “Bring it on!” he says, “I look forward to our next conversation in the truck.”
 
Parkinson's Victoria: http://www.parkinsonsvic.org.au/ 
Picture
The sign on David Kemp’s Bedford truck acknowledges his support of the local community.
8 Comments
Bernie Bambling
16/2/2018 09:04:24 pm

I have been thru the same process in the lasrt year. Different neurologist, different hospital.
Unfortunately the battery pack became infected and had to be removed. the infection was then detected travelling towards the probes and they also had to be removed.
I am awaiting replacements.
I wish David many happy future miles/kilometers in his red truck.

Reply
David Kemp
17/2/2018 10:29:52 am

Thanks Bernie for your good wishes. Sorry to learn of your infection and hope the replacements and process of installation goes smoothly and are effective.
Regards .... David

Reply
Bernie Bambling
22/2/2018 07:33:27 am

Just wanted to let you know that on 20/2/2018, I received notification that my refitting process is scheduled to start 16/4/2018. Happy Days.
BernieB

David Kemp
17/2/2018 10:26:59 am

Thanks Geoff for writing this.
Regards .... David

Reply
bob middleton
18/2/2018 03:32:56 pm

What men we have living in our Bass Coast region,both writer and his subject.. Well done Geoff and the well done to you David. The wonders of modern medical research and your positive attitude are mighty weapons .I wish you the very best of outcomes.

Reply
David Kemp
19/2/2018 10:47:57 pm

Thanks very much for your kind comments, Bob.
.... David

Reply
Geoff Ellis
27/3/2018 07:11:09 am


Hi Readers!

I just received this message:

Hi Friends
The DBS operation I had last Wednesday went well, taking two attempts to get both electrodes in the correct positions. Woke up with a massive, and still have, a headache but that was to be expected. The DBS Pacemaker unit was turned on last Friday and significant improvement in walking ability followed. There will be ongoing adjustments over next six weeks, during which period I am not allowed to drive or make major decisions.

Doctors are all pleased with the progress and I was discharged on Sunday.

Thanks for your support and prayers at this time.

Best regards,

David J Kemp

Reply
David Craven
10/2/2025 10:52:41 pm

My wife was diagnosed of Parkinson’s Disease at age 61. She had severe calf pain, muscle pain, tremors, slurred speech, frequent falls, loss of balance, difficulty in getting up from sitting position. She was put on Senemet for 6 months and then Siferol was introduced and replaced the Senemet. During this time span she was also diagnosed with dementia. She started having hallucinations and lost touch with reality. Last year, our family doctor started her on Uine Health Centre PD-5 formula, 2 months into treatment she improved dramatically. At the end of the full treatment course, the disease is totally under control. No case of dementia, hallucination, weakness, muscle pain or tremors. My wife is strong again and has gone on with her daily activities as I share this experience. I’m surprised a lot of PWP haven’t heard of PD-5 formula. we got the treatment from their website uinehealthcentre. com

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